EmailMe Form - Report missing/incorrect information

Orphanet UK and IE contact:
idoia.gomez-paramio@cmft.nhs.uk

Are you a Post-validator? *
Yes
No*
*You can become a Post-validator at www.orphanet.org.uk -> Register online & more => Become a Post-validator
Post-validator name *
First Last
Post-validator email *

Confirm
MISSING INFORMATION
In order to validate the information we will need:
- a URL with information about the research activity OR/and
- an official article (newsletter, etc) OR/and
- a short text (approx 250 words) written by the researcher or manager in charge.
Type of research activity *
Patient registry
Mutation registry
Biobank
Research project
URL with information
Name of manager/contact person (registries and biobanks) or Principal investigator (research) *
First Last
Email *

Confirm
Name of registry, biobank or research project *
This research activity is funded by:
Disease(s) /group of disease(s) concerned by this research activity
INCORRECT INFORMATION
Orphanet link to activity *
Name of Researcher/Manager linked to the activity *
Orpha number
Specify what needs to be amended *