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The Voices of Lupus - Share your Story.
Every lupus journey is unique and every voice matters. By sharing your story, you help others feel seen, understood, and less alone. Your experience has the power to educate, inspire, and bring hope to someone who may be struggling in silence. Your story could be the one that gives someone strength today. We would be honored to help amplify your voice. (Videos - people love seeing videos! If you prefer to answer these by video, attach your video below.)
**All questions are optional. Please answer the only ones you feel comfortable sharing. ***No obvious selfie pictures or filters please
Name
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First
Last
What name would you like us to use if we post on social or web?
City, State
Can we post your city and/or state if we post on social or web?
Email (internal use only)
*
Lupus Connection
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Living with Lupus
Caregiver
Friend
Family Member
Healthcare Professional
When were you or your loved one diagnosed? How long did it take to be diagnosed?
What has been the hardest part of your lupus journey?
How has life changed since you or your loved one's lupus diagnosis?
What has helped you stay strong?
If you could send a message to someone newly diagnosed, what would you say?
What is one piece of advice/tip you would give someone living with or caring for someone with lupus?
What do you wish people understood about lupus?
How has LFA and the lupus community made a difference in your life?
Why should someone support LFA's mission of improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.
Upload your picture (must be color with no filters) or send your video to infose@lupus.org through wetransfer.com.
Notes to LFA Southeast Region
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I hereby give the Lupus Foundation of America, Southeast Region the rights to share my story and use my name, quotes and/or photos and images on the Internet, social media outlets, and in print publications.
