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Canadian Premature Babies Foundation (CPBF) / Prema-Quebec provide support and educate families of premature babies, before during and after the NICU.
As you are a parent of a preterm baby/child, we would like to know about your experience getting information and your understanding about the Respiratory Syncytial Virus, (RSV) and other respiratory infections.
Your feedback is extremely important so that we can ensure all NICU parents get the information and education on RSV and other respiratory infections to decrease the risk of their baby/child getting sick.
Thank you for your time.
Please could you please fill out this anonymous survey that should take no more than 10 minutes
1- Do you know what RSV is?
*
Yes
No
2- How do you rate your knowledge of RSV?
*
Very Good
Good
Not so good
Very little
None
3 - How serious do you think an RSV cold could be for your baby/child?
*
Very serious
Serious
Not very serious
Not at all serious
4- Which respiratory infection do you think is the leading cause of hospitalization in children under one year?
*
Flu
RSV / bronchitis/ pneumonia
Bronchitis
Pneumonia
Other viruses
5- Do you take steps to protect your baby/ child from respiratory illnesses as well as you can?
*
Yes
No
6- Had you ever heard of RSV before your NICU experience?
*
Yes
No
If "yes", please click all that apply:
Previous experience with RSV
Social media (e.g. Facebook, blogs)
Healthcare professionals
Friends/family
Internet search
Think about the time you were in the NICU
(or if you are in the NICU now)
7- In the NICU, were you given information on RSV?
*
Yes
No
If yes: How did you get the information?
Please click all that apply:
Baby’s nurse
Doctor
Printed pamphlets
Parent education sessions
Prema-Quebec website
Canadian Premature Babies Foundation website
Friends/family
Social media (e.g. Facebook, blogs)
Internet Search
Other parents
Other
If "Other", please describe.
8- Were you given more in-depth education on RSV and other respiratory illnesses?
*
Yes
No
If NO, would you have wanted more education?
Yes
No
9- When you took your baby home, how confident did you feel in protecting your baby from respiratory illnesses?
Very Confident
Confident
Somewhat confident
Not at all confident
10- If your baby is still in hospital, how confident do you feel protecting your baby when you go home?
Very Confident
Confident
Somewhat confident
Not at all confident
Think about the time when you were discharged – if applicable
11- If you did NOT receive information on RSV in hospital, did you receive information after discharge?
Yes
No
If yes, how did you receive the information after discharge?
Please click all that apply:
Nurse
Doctor
Printed pamphlets
Parent education sessions
Prema-Quebec website
Canadian Premature Babies Foundation website
Friends/family
Social media (e.g. Facebook, blogs)
Internet Search
Other NICU parents
Other
If "Other", please describe.
12- Over and above the information and education received either in hospital or post discharge, did you search for more information?
*
Yes
No
If yes, where did you get more information?
Please click all that apply.
Family Doctor, pediatrician
Prema-Quebec website
Canadian Premature Babies Foundation website
Friends/family
Social media (e.g. Facebook, blogs)
Internet Search
Other NICU parents
Other
If "Other", please describe.
13- If you received all the information and education on RSV and respiratory infections,
Please click all that apply:
*
I was able to advocate for my child
I understood all the risks
I took all the precaution/advice to keep my baby/ child as healthy as possible
I did not get enough information/ education
14- Thinking about new families in the NICU, what would you recommend to be the best way for all NICU families to receive the correct information and education to keep their baby/child as healthy as possible?
Please click all that apply:
*
Nurse
Doctor
Printed pamphlets
Parent education sessions
Social media (eg. Facebook, blogs)
Internet search
Videos
Podcasts
Canadian sources (i.e. websites)
15- What could be the most effective way that Canadian Premature Babies Foundation (CPBF ) could get RSV and other respiratory infections information to you?
Please click all that apply:
*
CPBF website
Instagram
Twitter
Pamphlets
Webinars
Facebook group
Videos
Podcasts
Blog
Support Group
Other
If "Other", please describe.
DEMOGRAPHICS
Is your baby / child:
*
In the hospital
At home
What is your baby’s Date of Birth (DOB)?
*
MM
/
YYYY
What was your baby’s gestational age at delivery:
*
What was your age group at birth?
*
Under 25
26 - 35
36 - 45
46 - 55
other
Are you:
*
Mother
Father
Other
Do you have/had other children?
*
Yes
No
What is your highest level of education?
*
Not finished high school
High School
College
University
What province do you live in?
*
Alberta
British Columbia
Manitoba
New Brunswick
Newfoundland and Labrador
Northwest Territories
Nova Scotia
Nunavut
Ontario
Prince Edward Island
Quebec
Saskatchewan
Yukon
Do you live in a:
*
Large city
Small community
Rural community
Was your baby:
*
In a large Hospital
In a community Hospital only
Is there anything you would like to share with us? If yes, please write below.
